When Greyson was first diagnosed, our geneticist told us he had only ever seen tay-sachs in one other patient. That patient had late...

Today was a hard day. Today was a really hard day. I had to go back to work and I'm struggling with balancing work time and home time. My...

This was Greyson in his car seat when we were getting ready to leave the NICU. This tiny little peanut in his big car seat. I had so many...

*Adult language ahead- I apologize in advance* I know there are different stages to grief.. and I know that you can feel them in...

April 3, 2020 - Easter at the Zoo After we got our diagnosis- I think the first thing Adam and I decided to do was make memories with...

Hang in with me. This is going to be a little long. Where do I even start for this first post? Well, by now, I'm sure you've figured out...